Friday, July 1, 2011

Whirlwind Week: RE appointments

WOW! So much has happened this week... I'm having a hard time even processing it all, and that it's only been a week. If I got this much done in any "normal" week my house would be spotless, I'd be an excellent cook, I'd bake cookies for all my neighbors, and I'd have 3 jobs!

Monday morning we drove to Salt Lake (usually at least 5 hours from our house) to see the RE. We got to the office in record time, 4 hours and 45 minutes!!! So we were at least 1 hour early for our actual appointment. This was a very good thing, because when we got there... the RE's office was no longer in that building. I tried calling their office and it was doing some weird ring. So I go in and ask at the pharmacy in the medical building we were at and they tried calling and it did the same thing to them. But they told me where they thought the office was. I looked up the hospital, called them, and got connected. Lucky for me, we figured out where we needed to go and it was only a few miles away.

When we finally got there... we waited for 1 1/2 hours... I guess it's not always good to be so early ;) That evening the RE took my history, explained some things to us we were concerned about, like the possibility of a uterine abnormality, and finally asked how we were handling all this emotionally (that's when I finally lost it, cause you know I can't lie). But I did pretty well. Relatively speaking. By the time we were done, the office was closed and all the office staff had gone home, the lights were all out, and we were locked in. lol Needless to say, if for no other reason than to feel understood, for the first time, with all of our concerns, was well worth the drive!

That night we headed back to stay with my aunt and uncle. It is always a pleasure to be in their company and they were so gracious to let us stay with them with only a day's notice. If you read this, Thanks again!!!

The next afternoon we headed back to Salt Lake for the exam portion of the RE appointments. It was of course uncomfortable, but not nearly as bad as it used to be back before he did my laparoscopy and found/got rid of my endo, so that was wonderful to me. After noticing some various things, the RE reported that he things I have cushing's disease/syndrome. I just found this website, but all ready it's much more helpful than anything else I've read. It's scary... the words that keep zipping through my brain are MRI, tumor, surgery, radiation. I know that this is not even a diagnosis yet (because that in and of itself is hard to get), however, after reading what I have read... I have almost ALL of the symptoms. (One of which is difficulty remembering I have a possible legitimate cause!)

I'll write a seperate post about what we're doing moving forward, later.


Gretchen said...

Thinking of you and praying for you! Thanks for keeping us updated.

The Hopeful Elephant said...

I'm so glad you had a good visit! And I can't wait to read of the future and where you're headed...praying and sending love.